Re: bearing: I’m glad you did include something like this. Another angle would have been protective non-action factors, but your wording seems more solution-oriented.
Re: EQ-5D-5L (or something similar): I agree that the suffering and health-related quality of life or health utilities only partially overlap and that some dimensions will have more predictive power than others. What I would be interested to know is how big the discrepancy is between reported suffering and a generic instrument. Are people who suffer greatly reporting middling problems on other commonly used instruments? or How much does conventional QALY tools under-report extreme suffering? It could be another argument for why and how existing tools and metrics are inadequate.
One thing I struggle with in this area is how to think about temporal aggregation. Is one hour of suffering on two days worse than two hours of suffering one day? I am nonetheless glad to see OPIS trying to map out a ‘global burden of suffering’.
Good points! Some follow-ups:
Re: bearing: I’m glad you did include something like this. Another angle would have been protective non-action factors, but your wording seems more solution-oriented.
Re: EQ-5D-5L (or something similar): I agree that the suffering and health-related quality of life or health utilities only partially overlap and that some dimensions will have more predictive power than others. What I would be interested to know is how big the discrepancy is between reported suffering and a generic instrument. Are people who suffer greatly reporting middling problems on other commonly used instruments? or How much does conventional QALY tools under-report extreme suffering? It could be another argument for why and how existing tools and metrics are inadequate.
One thing I struggle with in this area is how to think about temporal aggregation. Is one hour of suffering on two days worse than two hours of suffering one day? I am nonetheless glad to see OPIS trying to map out a ‘global burden of suffering’.