Thank you for this thoughtful and thorough post! I’ve been following this complex chronic condition for many years, as I have a personal connection to it. Fortunately, there has been significant progress made in leveraging awareness, funding, and research, particularly over the past year based on the connection to COVID and a post-infectious disease process. Thought I’d share links to a couple of organizations leading these efforts. One just had a fundraising campaign in May, along with research updates. The other is promoting a campaign that doubles donations 1:1, up to $1M, through the end of this month so only 1 day left!
Solve M.E.
https://solvecfs.org/donate-to-the-solve-m-e-double-your-money-challenge/
Open Medicine Foundation
Here’s another related organization (studying the complex and dynamic relationship between microorganisms and human physiology/pathology) that I recently came across:
PolyBio Research Foundation
https://polybio.org/