Thank you for those links. I’ll look through, but I’m not super hopeful, as I’ve trialed dozens of medications, all of which have had zero or negative effect. Not even a glimmer of improvement, apart from amphetamine, although that only worked a couple times before tolerance, and is not a practical treatment.
As for therapy, I’ve tried a few times, and maybe it would work if I wasn’t so dang tired. But the work required for therapy takes a lot of energy I don’t have.
And as for ME/CFS, there aren’t many effective treatments. There are a few that work in some people, like LDN or antivirals, although I’d have to find a doctor who not only believes it’s a real disorder, but is up to date on the latest potential treatments, and those doctors are few and far between.
I’m hopeful in the promise that a ketogenic diet could improve my symptoms. One reason is the ever increasing anecdotal and study data showing large improvements in all sorts of chronic illnesses with the diet. Another reason is that removing carbs feels very similar to the withdrawal I felt from the psychiatric medication, so I think it is possible that it is like drug withdrawal, and I would feel better after some time off of them. Unfortunately, the withdrawal is so bad and lasts so long, I can’t just jump right in, so I’m very slowly tapering, just like I did with the medication.
I’m sorry to hear treatments generally haven’t helped in the past.
I sometimes find it useful to think about these things in the following way. It feels like a lot to sacrifice energy to do therapy when you’re already limited in terms of energy. But if it works particularly well, maybe you’ll have something like an extra day of energy a week for… well for your whole life. It might be worth doing even if it takes a lot now, and even if the odds of success are low. (Of course, in some cases the odds are so low that it isn’t worth it).
I don’t know much about the specifics here, my own experience has been with anxiety, depression and adhd.
Thank you for those links. I’ll look through, but I’m not super hopeful, as I’ve trialed dozens of medications, all of which have had zero or negative effect. Not even a glimmer of improvement, apart from amphetamine, although that only worked a couple times before tolerance, and is not a practical treatment.
As for therapy, I’ve tried a few times, and maybe it would work if I wasn’t so dang tired. But the work required for therapy takes a lot of energy I don’t have.
And as for ME/CFS, there aren’t many effective treatments. There are a few that work in some people, like LDN or antivirals, although I’d have to find a doctor who not only believes it’s a real disorder, but is up to date on the latest potential treatments, and those doctors are few and far between.
I’m hopeful in the promise that a ketogenic diet could improve my symptoms. One reason is the ever increasing anecdotal and study data showing large improvements in all sorts of chronic illnesses with the diet. Another reason is that removing carbs feels very similar to the withdrawal I felt from the psychiatric medication, so I think it is possible that it is like drug withdrawal, and I would feel better after some time off of them. Unfortunately, the withdrawal is so bad and lasts so long, I can’t just jump right in, so I’m very slowly tapering, just like I did with the medication.
I’m sorry to hear treatments generally haven’t helped in the past.
I sometimes find it useful to think about these things in the following way. It feels like a lot to sacrifice energy to do therapy when you’re already limited in terms of energy. But if it works particularly well, maybe you’ll have something like an extra day of energy a week for… well for your whole life. It might be worth doing even if it takes a lot now, and even if the odds of success are low. (Of course, in some cases the odds are so low that it isn’t worth it).
I don’t know much about the specifics here, my own experience has been with anxiety, depression and adhd.